CIDP and Me Phase 4 - Back to Life, Back to Reality

I'd like to tart by thanking everyone for your words of support and encouragement following my last post. It is nice to hear that I'm not necessarily being crazy or overreacting (at least not about this). I would also like to apologize for my long silence. I did not mean for almost a month to pass between posts - I just haven't had a lot to report.

I have been settling back into real life after 4+ months of institutional living and have to say, there is no place like home! It is great to sleep in a normal bed, to eat what I want, when I want, to see Scott and Barney all the time, and to be surrounded by my own things and spaces. We are totally set up here now so that Scott can leave me home alone for hours without worry, which is great. I'm still not working - let's not get ahead of ourselves  - but do feel a little more normal.

Outpatient physio started last week and so far it is great. I go 3 times a week for 1.5-2 hours per session. We are focusing on the things I can't do at home - walking and therabike - while also working on leg exercises and some upper body strengthening. I have a different physiotherapist but am in the same space as I was in rehab. It was kind of fun when I showed up for the first time and saw patients and other staff members who I liked while I was there.

I have no major milestones to report but I continue to get stronger and am able to do a few new leg exercises, which is exciting for me. I'm also going to start going to the pool once a week with a friend. I think this will also really help strengthen my legs.We'll see how it goes...

My IVIG schedule has changed a bit too. I am now getting it over 2 days (instead of 5) every other week (instead of every 3 weeks). I have had one treatment under this schedule so far and it was fine. I was really wiped out at the end of the second day but did not have a headache or anything nasty. I really liked how it didn't take up my whole week.

Other than that I am trying to reconnect with people and get out of the house as much as possible. I had a visit from one of my best and oldest (not age-wise) friends a couple weekends ago and that was great! It turns out my tolerance for wine is quite pathetic now, but I can work on that:).

That's it for now.