I know, I wrote last week, how can I possibly be updating again so soon?! Well, I had a really good week and feel like sharing. Plus, I don't want this blog to be all doom and gloom and hardship, so I will take a few minutes to dwell on the little positive things.
I LOVE my new physiotherapist! She is absolutely fantastic and has kicked my motivation into hyper-drive. We've had 3 sessions now and are already seeing improvements. She is focusing on walking and sit-stand in our sessions and leaving most of the stretching and bed exercises for Scott and I to do at home. This is great as it really maximizes our time together. She did do a full assessment of my home program on Monday and made a few changes. Scott was with me for that session, which was a good thing. I was pleasantly shocked to find that I can do a few exercises that were still pipe dreams when I left rehab. I knew my legs were stronger, but didn't realize how much progress I actually made. Yay me! So physio is great. I am seeing her twice a week and feel really good about it. I've also been even more diligent with my home program. I really feel like I can and will get out of this chair. It's a nice feeling.
The weather has finally warmed up here and that is also helping my mood. We've been out a little more - I'm like the dog or a toddler and, if I'm good, we get to go to the park and then have ice cream:) We also went out for supper with some friends one night and managed to do a number of errands. Nothing too exciting but it is nice to get out.
One of the positive side effects of this whole experience has been weight loss. Much of it is muscle atrophy, but enough was good ole fat that I'm feeling good about it. I do need to work on my abs a bit though. Anyway, not to brag or complain but I have lost about 40lbs since this all started last Spring. This means that my clothes do not really fit anymore. So, after months of procrastination and delay, Scott and I hit the mall on Friday morning to restock some essentials. It was relatively painless and we ran into a couple work people, which was nice. I've finally reached a comfort level where I'm happy to run into people rather than nervous. I know my condition is a little discomforting for people when they first see me, but I'm the same person, so no need to hide.
On the home front my increased energy means that I am re-assuming an active role in the household. I can't do everything but I can tidy up and dust and fold laundry. Organization and making sure that things I may want are reachable is really important and can easily become messy piles of junk everywhere. I cleaned the shit out of the living room today and my Virgo sensibilities are finally sated.
The only negative thing that happened this week (well, other than the Brexit - WTF UK???!) is what I call a first world CIDP problem. My hands are too weak to crack open a new screw top bottle of wine. Sigh. Scott took care of it when he got home though and I have since ordered some jar opener gadgets from Amazon. Rest easy, wine is back in my blood stream (in mild-moderate amounts, of course).
So there it is. Sometimes it is possible to stay positive and motivated and to put aside the crap and enjoy the day. I hope everyone else is having a great week too.
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